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Been a Loong Week
May. 8th, 2011 08:11 pmOkay, so I've had my first MS medication infusion. And I'm not dead yet! Dear god, between the drug company and the insurance company, and to a much lesser extent, my neurologist, I was half convinced I was going to die in the first week.
But the process went very well. Except for a little problem with the first IV catheter, which blew as soon as the nurse checked patency with the flush. So now I have a lovely, brightly colored bruise. The second catheter was fine and the infusion itself was uneventful. The staff at the infusion center were extremely nice and professional and the center itself is quite nice. I spent most of my time there chatting with the kidney transplant patient next to me. And I have a ride for my next visit in June. My hairdresser (who is also a friend) is going to take me. I will meet her at my job site and she will take me the rest of the way and bring me back to my car. Which saves me about two hours in drive time. Such a relief!
My eye is the same and I am extremely exhausted, but other than that, so far I am hanging in there. I seem to be a bit on the weak side, but I can't tell if that is an MS symptom or just because I'm so damned fatigued. This disease is just a big old guessing game.
But the process went very well. Except for a little problem with the first IV catheter, which blew as soon as the nurse checked patency with the flush. So now I have a lovely, brightly colored bruise. The second catheter was fine and the infusion itself was uneventful. The staff at the infusion center were extremely nice and professional and the center itself is quite nice. I spent most of my time there chatting with the kidney transplant patient next to me. And I have a ride for my next visit in June. My hairdresser (who is also a friend) is going to take me. I will meet her at my job site and she will take me the rest of the way and bring me back to my car. Which saves me about two hours in drive time. Such a relief!
My eye is the same and I am extremely exhausted, but other than that, so far I am hanging in there. I seem to be a bit on the weak side, but I can't tell if that is an MS symptom or just because I'm so damned fatigued. This disease is just a big old guessing game.
